Dysautonomia, an invisible illness

Dysautonomia, an invisible illness


Hi. I made this video to tell you a little about a medical condition called dysautonomia. I am not a medical professional. I am someone who suffers with dysautonomia, and I used information from the resources which I’ve included in the references and credits. Do not use the information in this video as a substitute for consulting with a licensed medical professional. broadly speaking, dysautonomia means problems with the autonomic nervous system the autononmic nervous system controls lots of unconscious processes in the body for example the automatic nervous system regulates heart rate, blood pressure,
digestion, pupil dilation and constriction, and temperature control, as well as other things. Symptoms of dysautonomia vary, but they can include fatigue, lightheadedness, passing out, heat intolerance, weakness, malnutrition, and cognitive impairment. Dysautonomia can occur secondary to another disease, like diabetes or Ehlers-Danlos Syndrome, or it can occur as a primary disorder. These conditions are often misdiagnosed, and secondary dysautonomia is more common than primary. some people with dysautonomia can lead pretty active lives, and some are so sick that they can barely get up or out of the house. even for one person, symptom severeity can fluctuate depending on the day or the context. A person with dysautonomia might be able to do something one day… but not be able to do the same thing on the next day. someone with significant cardiovascular symptoms may need a wheelchair to get around places where they’d have to do a lot of standing or walking, but not need a wheelchair at other times. This sort of “on and off” disability confuses a lot of people and can result in some tragic misunderstandings To make matters worse many people with dysautonomia look healthy despite sometimes being very sick There’s currently no cure for dysautonomia, although symptoms of secondary dysautonomia can improve by treating the underlying disease.

7 thoughts on “Dysautonomia, an invisible illness

  1. Consider writing your story for a global advocacy and awareness platform called My Invisible life. We'd love to have you. www.myinvisiblelife.net

  2. Hello Laura.  You've just made my day with this video.  It is very well done and explains dysautonomias in such a way that it will make sense to anyone who watches it.  I love what you said about the varying symptoms of this invisible illness.  Some days I can't climb one flight of stairs without severe shortness of breath and tachycardia.  I'm newly diagnosed as of 8/3/16 and I have a mild traumatic brain injury that I've been recovering from the past year.  I'm sure the ANS got triggered by the brain injury as I had never had these types of issues beforehand.  Thank you for sharing this helpful information.

  3. Thanks for placing links. My son was recently diagnosed 4 months ago. He has been misdiagnosed for years. I had to keep pushing, the doctors said he was healthy. He couldn't even finish high school, but he finally got his G.e.d. The walk just to go and take his test was very tiring and when he got in front of the computer he said it said it was hard to focus. He deals with chronic daily headaches with migraines 24/7 it gets worse in heat. His blood pressure and heart rate goes up just by any movement. He is on a beta blocker it hasn't helped yet. Once again, thanks for posting

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