Kenya McAdam – Rheumatic Heart Disease Survivor, Champion and Film Maker

Kenya McAdam – Rheumatic Heart Disease Survivor, Champion and Film Maker


I have been working with rheumatic heart disease Australia since I was 16 years old. I’ve been providing IRF symptoms for people to learn how to diagnose themselves and obviously tell the clinic and I’ve also been Speaking at conferences in front of specialists and doctors and health workers and a lot of different health stuff about the symptoms and how How these things shouldn’t go on diagnosed because it can progress into something Really? Worse for me to give back to the community by taking part in this. Um rheumatic heart disease Champions program it’s it’s actually really good And I can see that there’s a lot of people that are in the program that are really passionate about getting rid of somatic heart disease and really like giving giving awareness about it and educating people about it and just really like Getting behind people who actually have it and giving them the support they need and really guiding them through this journey I’m hoping to get get more awareness out about rheumatic heart disease and roulette ik fever because a lot of people think oh It’s target it’s tagged as a disease So when you say you have a disease a lot of people there’s a social stigma to it So I want to get rid of that You know, I thought having the medical disease was going to restrict me from everything like getting a job You know getting a partner getting getting getting My license and whatever, you know I thought having that is having the having rheumatic heart disease was gonna stop me from doing all of those things, but it hasn’t It hasn’t stopped me from doing anything I wanted to do now I’m I’m in a position where I’m actually hoping people and I actually care about the people, you know, and Yeah, I’m happy Where I am right now in life the films that we did around America these in Relationships and then the one in families. It was more based around the social stigma of actually living with it and Having to actually tell someone that you’ve got it Because as a young person when you’re you know, you’re going through that sort of stage where you’re getting into relationships, you know, you’re finding yourself and you’re pushing the limit on your body, but you don’t know how far to go and you don’t know whether someone’s gonna run malls, you know stay around and the family side of it is more informing young women that if you do have Somatic, heart disease automatic fever and you do want to have a baby. It’s very important to actually tell your doctor and manage it it’s been a really good opportunity working with rheumatic heart disease towards getting awareness out for ematic heart disease and rheumatic fever and I’m really looking forward to Continuing my work with rheumatic heart disease Australia and promoting awareness for rheumatic heart disease and acute rheumatic fever You

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