Living with Polycystic Kidney Disease

Living with Polycystic Kidney Disease


IT IS A DEVASTATING DISEASE THAT HAS NO TREATMENT OR CURE AND EFFECTS MILLIONS OF PEOPLE WORLDWIDE. WE ARE TALKING ABOUT POLYCYSTIC TO THE DISEASE. JOINING US NOW IS SOMEONE WHO’S HERE TO SHARE HER SURVIVAL STORY. THANK YOU FOR BEING HERE. GOOD MORNING. TELL US ABOUT YOUR STORY AND WHAT YOU WANT TO DO TO HELP OTHER PEOPLE. TODAY IS AN EXCITING DAY. IT IS PKD AWARENESS DAY. I WAS DIAGNOSED WITH THIS DISEASE WHEN I WAS 10 YEARS OLD. I HAD A KIDNEY TRANSPLANT 12 YEARS AGO AND TODAY IS A DAY WHERE WE ARE USING VOICE IS TO SPREAD AWARENESS. NOT MANY PEOPLE KNOW ABOUT THIS DISEASE BUT IT HAS HAD A DEVASTATING IMPACT . WHAT ARE SOME OF THE WARNING SIGNS? WHAT CAN PEOPLE DO TO LOOK OUT FOR THIS? THIS IS ONE OF THE MOST COMMON LIFE-THREATENING GENETIC DISEASES. I WAS DIAGNOSED WITH HIGH PRESSURE WHEN I WAS 10 YEARS OLD AND WAS SENT FOR AN ULTRASOUND. WHAT HAPPENS WITH THIS DISEASE IS THIS ALLUDES THE KIDNEYS AND DETERIORATES THE FUNCTION. AT THIS TIME, THERE IS NO CURE, SO IT’S ONLY DIALYSIS OR TRANSPLANT AS AN OPTION AND I HAD DIALYSIS AND TRANSPLANT. I’VE BEEN USING MY FIRSTHAND KNOWLEDGE TO HELP OTHERS. WHEN YOU SAY PKD, PEOPLE DON’T LOOK — PEOPLE DON’T KNOW WHAT IT IS. HIGH BLOOD PRESSURE CAN BE ASSIGNED AND ALSO SOMETIMES PEOPLE GO TO THE DOCTORS TO HAVE THIS RUPTURE. THERE ARE COMPLICATIONS THAT COME FROM THIS DISEASE. IT AFFECTS EVERYONE ON MY MOMS SIDE OF THE FAMILY. IT’S GREAT YOU ARE SHARING YOUR STORY AS WELL. THERE IS THE PKD FOUNDATION. IT’S THE ONLY ORGANIZATION IN THE UNITED STATES HELPING TO FIND A CURE AND DO RESEARCH. I ALSO WRITE A WEEKLY INSPIRATIONAL BLOG.

17 thoughts on “Living with Polycystic Kidney Disease

  1. There's no overnight healing method  for kidney disease, but you possibly can overcome the acute pain caused from kidney disease within 3 months all by all-natural therapy.

  2. I'm not sure but ,if anyone else wants to uncover improve kidney function treatment try Lomonting Natural Kidney Mentor (Have a quick look on google cant remember the place now ) ? Ive heard some unbelievable things about it and my work buddy got great success with it.

  3. She's so young and as able to get a transplant already? Wonder how that happened unless she got it from a family member, but that's unlikely. I've been on dialysis for 2.5 years now and to be honest, I don't care if I EVER get a transplant. I go to such a fantastic clinic that I actually look forward to going there! I have a heated vibrating recliner, a 22" flat-screen TV, and I weight 10 lbs. lighter when I leave. Above all, I as able to live life again.

  4. I was diagnosed when I was 9. My dad and sister have it as well. I try to forget about it but the pain and high blood pressure remind me on a daily

  5. interesting points ,if anyone else wants to learn about
    home remedies for kidney disease
    try Franaar Healthy Kidney Formula ( search on google ) ? Ive heard some pretty good things about it and my neighbor got great results with it.

  6. Not certain about the points made but ,if anyone else wants to uncover
    kidney function low
    try Franaar Healthy Kidney Formula (do a search on google ) ? Ive heard some super things about it and my mate got great success with it.

  7. Lovely video content! Forgive me for butting in, I am interested in your opinion. Have you ever tried – Trentvorty Perfection Kidney Theorem (do a search on google)? It is a great one of a kind product for improving kidney function minus the headache. Ive heard some interesting things about it and my m8 after a lifetime of fighting got cool success with it.

  8. I was Diagnos as PKD both kidney are enlarge due to cyst Im on diet may back still have pain like every morning when i wake up its like muscles are twisted what shoul i do

  9. I was just diagnosed in June. I’m 41. Who knows how long I’ve had it. I’m at stage 3. I am taking blood pressure medication. I drink lots of water and changed my diet. Not sure what else I need to do

  10. I have it and was told at 29 I could get it now nearly 40 I have it. BP was high till I was put on meds. I am overall doing well in tests but the creatinine is getting worse so my medicine is changing.

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